Activity Overview
Visiting the doctor can be overwhelming for individuals with aphasia. Medical visits often involve complex language, fast-paced conversations, and important decisions. This guide offers practical ways to prepare, communicate, and participate confidently during healthcare visits.
See the CommunicationFIRST Hospital Toolkit for hospital-specific information, including a form for rights and accommodation needs for people with communication disabilities such as aphasia. This toolkit was created during Covid-19, but is still useful today.
Goal
Help people with aphasia and their families prepare for and manage medical visits effectively using supported communication strategies.
What to Expect
- Make Appointment → Check-In → Wait → Doctor Visit → Follow-Up or Prescription
- May involve filling out forms, answering questions, or describing symptoms.
- Visits may be in-person, on the phone, or via virtual portals.
Preparation Tips
- Review calendar including: day of the week, date, and time.
- Discuss the type of MD appointment, use the medical portal or internet to find a photo of the provider, specialty, and location. Your medical portal may even have a video introduction of the physician/provider.
- Consider using a binder with medical history/overview, medications/allergies, and a section for questions / concerns.
- Write out and practice communicating questions to establish as much independence as possible.
Communication Supports
- Bring a printed communication board or phrase sheet
- Ask yes/no questions:
- “Is this medicine for pain? Yes or No?”
- Use gestures or point to images when needed
- Create an emergency folder with:
- The person’s photo, Medical ID card, and emergency contacts
- List of medications, allergies, and health conditions (this can be done with simple bullet points)
- “I have aphasia” alert card or bracelet
- “Chest pain,” / “Dizzy,” / “Allergic to…” and pain scales can help.
- Resources:
Support for Family & Care Partners
- Help practice answering likely questions before the visit.
- Stay quiet when not needed; let the person with aphasia lead.
- Ask to address the provider or step in to advocate if something is not understood.
- Bring paper and a pen to help explain or take notes and review when you get home.
Real-Life Examples
“My doctor talks to him. I can do it. Not fair.” — Michelle, person with aphasia
“We made a doctor visit checklist that hangs on the fridge. It gives my husband confidence.” — Peter, care partner