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Advocating for Aphasia

Aphasia changes how people communicate, but it doesn’t silence their voices. Advocacy gives those voices power. Whether you’re a person with aphasia, a family member, a clinician, or a community ally, you can be an advocate.

Why is advocacy important?

Advocacy helps raise awareness, improve services, influence policy, and shape research. It is essential to improving life for people with aphasia today—and for generations to come.

Advocacy isn’t only about research or big systems—it also happens in everyday moments. When you explain aphasia to a friend, ask your doctor to use simpler language, or tell your story to a local news outlet, you’re changing minds and breaking down barriers.

The Role of the Advocate

  • Increase visibility so more people understand aphasia
  • Reduce stigma by challenging harmful stereotypes
  • Create community through connection and shared experience
  • Drive policy change to expand access to services and supports
  • Inspire hope by showing what’s possible with support

Ways to Advocate for Aphasia

Advocacy means taking action to create change. There is no “right” way to advocate. Every effort counts.  Here are some ideas for how to be an aphasia advocate:

  • Educating others about what aphasia is (and what it isn’t)
  • Pushing for better access to therapy, care, and community support
  • Encouraging inclusive communication practices in public life
  • Supporting and participating in research to improve treatment
  • Raising funds and attention for underserved communities
  • Wear a t-shirt or carrying swag with the word aphasia on it.

Who Can Be an Advocate?

Anyone. Everyone. You. You don’t need a title or special training. If you care, you can advocate.

  • People with aphasia are the most powerful voices in this movement
  • Care partners and family members offer essential insights and leadership
  • Speech-language pathologists and professionals bridge gaps in care and communication
  • Friends, neighbors, and community leaders can open doors and change hearts

If you are interested in advancing your advocacy work, consider joining our NAA Ambassador Program.

Aphasia Awareness Month

June is Aphasia Awareness Month

Every June we ramp up our aphasia awareness and advocacy efforts in honor of Aphasia Awareness Month.

In 2026, we were “United for Aphasia Awareness”. Our community came together to obtain official Aphasia Awareness Month Proclamations across the country.

Click the link below to learn more about Aphasia Awareness Month at the NAA.

Kesslers listening to a student presentation

Advocacy in Aphasia Research

Aphasia research is stronger when it includes the voices of the people it’s meant to help. Advocates are changing the way research works by:

  • Sharing real-life perspectives to guide research priorities
  • Participating in studies to improve therapies and interventions
  • Advising researchers to make studies more accessible and relevant
  • Raising awareness of open research opportunities in the community
  • Promoting funding for innovative, person-centered research

People with aphasia and their families are no longer just study participants—they are partners in discovery.

At the National Aphasia Association, we support this shift by funding research that centers lived experience, such as through our Barbara Martin Aphasia Research Grants and Outdrive Aphasia PPA Research Grants.

The Martha Taylor Sarno Advocacy Award

The Martha Taylor Sarno Advocacy Award is the highest honor bestowed upon an individual by the NAA.

This annual award recognizes an individual with aphasia who best represents the NAA’s mission of promoting public awareness and understanding of aphasia.

Individuals are nominated by their community, and the winner is selected by an NAA committee. The Awardee is announced at the Speaking Out Conference.

Follow the link below to learn more about the award and past awardees.

woman caregiver giving a side hug to an elderly woman, , National Aphasia Association