What Matters Most to People With Aphasia?

The Core Impact Project is identifying the impacts of aphasia that matter most to people living with aphasia.

People with aphasia are helping lead the way.

Together with care partners, professionals, and researchers, we are identifying priorities that can help guide future research, care, programs, and resources.

Together, we are identifying what matters most to people living with aphasia.

• We Gathered Impacts
  We reviewed research and other patient-centered sources about the impacts of aphasia
• We Listened to People With Aphasia
  People with aphasia and care partners shared what matters most in their lives.
• People With Aphasia Prioritized
  People with aphasia identified the impacts that matter most to them.
• We Added Professional Perspectives
  Healthcare professionals and researchers shared their priorities.
• We Came Together
  People with aphasia, care partners, professionals, and researchers discussed and prioritized the impacts together.

Coming Soon:  The Aphasia Patient-Centered Core Impact Set is almost here.

People with aphasia helped guide the project from the beginning. Professionals and researchers added their perspectives, and everyone came together to prioritize the impacts.

Creating a Roadmap

The Core Impact Set tells us what matters most. Next, we will create a roadmap for turning these priorities into action.

We are sharing this work with the aphasia community and researchers around the world.

See Where We Have Shared Our Work

Academy of Aphasia – Liege, Belgium

Dunne, M., Irby, K., Silverman, M., Hinckley, J., & Kiran, S. (2026, October 4-6). Prioritizing the impacts of aphasia: A multi-domain priority analysis across stakeholder groups. Poster presentation at the 2026 Academy of Aphasia, Liege, Belgium.

Collaboration of Aphasia Trialists – Athens, Greece

Dunne, M., Irby, K., Silverman, M., Kiran, S., & Hinckley, J. (2026). Transforming Lived Experience Into Research Direction: NAA’s Patient-Centered Core Impact Set and Roadmap for U.S. Aphasia Research. Oral presentation at the 2026 Collaboration of Aphasia Trialists Annual Meeting, ESR/JSR Presentation, Athens, Greece.

Clinical Aphasiology Conference – Pittsburgh, PA

Dunne, M., Irby, K., Silverman, M., Hinckley, J., & Kiran, S. (2026). Applying the Patient-Centered Core Impact Sets Framework to Aphasia: A Qualitative Meta-Synthesis. Poster presentation at the 2026 Clinical Aphasiology Conference. Pittsburgh, PA, US.

International Aphasia Rehabilitation Conference – Athens, Greece

Silverman, M., Dunne, M., Irby, K., Hinckley, J., & Kiran, S. (2026). Beyond the Literature: Focus Group Perspectives on Aphasia Impacts Compared to an Environmental Scan. Poster presentation at the 2026 International Aphasia Rehabilitation Conference. Athens, Greece.

Dunne, M., Irby, K., Silverman, M., Hinckley, J., & Kiran, S. (2026). A Quantitative Analysis of Stakeholder Priorities Across Domains of Aphasia Impact. Poster presentation at the 2026 International Aphasia Rehabilitation Conference. Athens, Greece.