Partnering in the Care of a Loved One with PPA
Date: November 13, 2025
Topic: Partnering in the care of a loved one with PPA and/or PPAOS
Experts: Kiiya Shibata, Abbe Simon, Lisa Bryan, Cath Kline, and Becky Rizvi
In this powerful session, we hear directly from care partners of individuals living with Primary Progressive Aphasia (PPA) and Primary Progressive Apraxia of Speech (PPAOS). Moderated by speech-language pathologists Abbe Simon and Kiiya Shibata, this heartfelt conversation explores the joys, challenges, strategies, and questions that care partners face in daily life. Panelists share personal stories around communication changes, identity shifts, caregiving fatigue, unexpected humor, and creative solutions—from adult day programs to choirs, iPad apps like TD Snap, and reframing routines with a focus on connection. Whether you’re new to the diagnosis or deep into the caregiving journey, this conversation offers comfort, camaraderie, and community.
Resources:
- March 2025 Ask the Expert Webinar: Planning for Peace of Mind with Carolina Family Estate Planning
- NAA’s Communication ID Cards
- FTD Registry
- Speech App Mentioned: TD Snap by Tobii Dynavox
- Email the NAA for PPA Support & Questions: ppa@aphasia.org
