The Role of the Advocate

Aphasia changes how people communicate—but it doesn’t silence their voices. Advocacy gives those voices power.

Whether you’re a person with aphasia, a family member, a clinician, or a community ally, you can be an advocate. Advocacy helps raise awareness, improve services, influence policy, and shape research. It is essential to improving life for people with aphasia today—and for generations to come.

What Is Advocacy?

Advocacy means taking action to create change. For aphasia, that can mean:

  • Educating others about what aphasia is (and what it isn’t)
  • Pushing for better access to therapy, care, and community support
  • Encouraging inclusive communication practices in public life
  • Supporting and participating in research to improve treatment
  • Raising funds and attention for underserved communities

You don’t need a title or special training. If you care, you can advocate.

If you are interested in advancing your advocacy work, consider joining our NAA Ambassador Program.

Everyday Advocacy

Advocacy isn’t only about research or big systems—it also happens in everyday moments. When you explain aphasia to a friend, ask your doctor to use simpler language, or tell your story to a local news outlet, you’re changing minds and breaking down barriers.

Advocates help:

  • Increase visibility so more people understand aphasia
  • Reduce stigma by challenging harmful stereotypes
  • Create community through connection and shared experience
  • Drive policy change to expand access to services and supports
  • Inspire hope by showing what’s possible with support

 

Who Can Be an Advocate?

Anyone. Everyone. You.

  • People with aphasia are the most powerful voices in this movement
  • Care partners and family members offer essential insights and leadership
  • Speech-language pathologists and professionals bridge gaps in care and communication
  • Friends, neighbors, and community leaders can open doors and change hearts

There is no “right” way to advocate. Every effort counts.  Even wearing a t-shirt or carrying swag with the word APHASIA on it, will make a difference.  Check out our online store at the Aphasia Marketplace

Advocacy in Aphasia Research

Aphasia research is stronger when it includes the voices of the people it’s meant to help. Advocates are changing the way research works by:

  • Sharing real-life perspectives to guide research priorities
  • Participating in studies to improve therapies and interventions
  • Advising researchers to make studies more accessible and relevant
  • Raising awareness of open research opportunities in the community
  • Promoting funding for innovative, person-centered research

People with aphasia and their families are no longer just study participants—they are partners in discovery.

At the National Aphasia Association, we support this shift by funding research that centers lived experience, such as through our Barbara Martin Aphasia Research Grants and new PPA Research Grants.  We also include individuals with aphasia, care partners and providers on vital organizational committees and task forces.