National Nonprofit Partners in Aphasia & Related Conditions

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National Nonprofit & Professional Organizations

In addition to our advisors, committees, and volunteers, the National Aphasia Association proudly recognizes a number of national nonprofit organizations doing vital work related to aphasia, stroke, brain injury, primary progressive aphasia (PPA), and related neurological conditions.

These are independent nonprofit organizations that work alongside us in advocacy, education, research, and support. They are not advisory members or NAA programs, but we include them here to help individuals and families better understand the broader landscape of support and resources available nationwide.

If you’re looking for direct aphasia services, local aphasia centers, or support groups, please visit our Resources Directory

We value these organizations as collaborators in the mission to improve communication access, care, and quality of life for those affected by aphasia and related diagnoses

Academy of Aphasia (AoA)

An international, multidisciplinary professional organization dedicated to the study of aphasia and related neurogenic communication disorders.
Hosts an annual meeting to present and discuss current research in the field.
academyofaphasia.org
clinicalaphasiologyconference.org

American Speech-Language-Hearing Association (ASHA)

National professional association for speech-language pathologists, audiologists, and communication scientists.
Provides information on speech-language disorders and professional standards.
asha.org

American Stroke Association (ASA) (a division of the American Heart Association)

Offers stroke prevention, recovery, and rehabilitation resources.
Provides survivor stories, caregiver support, and medical education.
stroke.org

Aphasia Access

Professional membership organization advancing the Life Participation Approach to Aphasia (LPAA).
Connects clinicians, researchers, and educators to improve care outcomes.
aphasiaaccess.org

Aphasia Hope Foundation

Promotes awareness and offers resources for those with aphasia and their caregivers.
Shares stories and links individuals with therapy and research opportunities.
aphasiahope.org

Aphasia Recovery Connection (ARC)

Peer-led organization providing online support and connection for people with aphasia and their families.
Offers educational resources, online groups, and life participation programming (including cruises!).
aphasiarecoveryconnection.org

Brain Aneurysm Foundation

Leading advocacy organization supporting education, research, and policy to transform the treatment of brain aneurysms.
Provides support groups, educational materials, and funds research initiatives.
bafound.org

Brain Injury Association of America (BIAA)

National advocacy and resource organization for individuals with all types of brain injury.
Provides education, legal resources, and public policy leadership.
biausa.org

Clinical Aphasiology Conference (CAC)

Annual forum for clinicians and researchers engaged in the study and clinical management of persons with acquired neurologic language disorders.
Facilitates the exchange of ideas and dissemination of research findings in an informal setting.
clinicalaphasiologyconference.org

Communication First

Civil rights organization led by and for people with speech-related disabilities.
Focuses on protecting communication access and augmentative and alternative communication (AAC) rights.
communicationfirst.org

CurePSP

Supports people with Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), and related neurodegenerative diseases, some of which include PPA presentations.
Funds research and provides educational and caregiver resources.
curepsp.org

Dementia Alliance International

Global organization led by people living with dementia, including those with PPA.
Promotes human rights, peer support, and inclusion in research and advocacy.
dementiaallianceinternational.org

National Institute on Deafness and Other Communication Disorders (NIDCD)

Federal agency under NIH supporting research on communication disorders.
Publishes educational materials and research on aphasia, voice, hearing, and language.
nidcd.nih.gov

National Rehabilitation Information Center (NARIC)

Collects and disseminates disability and rehabilitation research.
Offers information on assistive technology and evidence-based rehabilitation.
naric.com

PPA Research Consortium

Collaboration of researchers working to understand and treat Primary Progressive Aphasia.
Conducts clinical research and supports public education.
ppaconsortium.org

Stroke Onward

Supports survivors and families in rebuilding identity and emotional well-being after stroke.
Founded by stroke survivor Debra Meyerson and her husband Steve Zuckerman.
strokeonward.org

United States Brain Injury Alliance (USBIA)

Network of state organizations working to improve access and outcomes for people with brain injury.
Offers advocacy, education, and community-based support initiatives.
biausa.org