International PPA survey

What is the research about?

• We are studying primary progressive aphasia (PPA) and how it changes over time.
• We want to learn which symptoms happen, how they change, and what is most important to people with PPA and their families.
• We also want to see whether experiences of PPA are different in different languages and cultures.
• Family members, friends, and bereaved caregivers will be asked to complete an online survey about their experiences of supporting someone with PPA.
• The survey asks about symptoms, changes over time, helpful support and strategies, and the impact of PPA on daily life.

Where does this research study take place? Online - survey study

Can I participate virtually? Yes

Who is this study for?

• 18 years or older
• Know or knew a person with a diagnosis of PPA, including a person who has died
• Able to provide informed consent
• English speaker (survey is currently only available in English)

Who is this study not for?

• NA

I might be interested! Who can I contact?

Contact Name: Chris Hardy

Email: chris.hardy@ucl.ac.uk

Phone: +447923634499